Come play with Jacob!

We are excited to announce our first Knockerball Tournament fundraiser to help fund Jacob’s twice yearly visits to IAHP in Philadelphia.  This is certain to be an absolute blast for all to come to play!  Sign up today… we only have room for 16 teams!


So what is Knockerball?!  Just imagine playing soccer inside a giant bubble.  Super fun, right!?  Well it gets even better!   We will also have a Bossaball quart set up, which is a giant inflated volleyball court with trampolines in the center!


For details and to sign up, please visit our Facebook page I Am On Team Jacob.  There you will be able to buy tickets.  You can register as an individual, or as a team of up to 7 people! If you would like to support Jacob, but cannot attend, you can make a tax-deductible donation by clicking here!

We have set up this day of play to help our little boy have a fighting chance to play as well!  He is doing so well and inspires us every day!  Please join us for this incredible event and help Jacob continue his treatment at IAHP!  Remember to visit and “Like” the Facebook page, I Am On Team Jacob, to keep up on this great event and more Jacob updates!

Jacob’s Letter to Grandma

Its truly an amazing thing to go from, “your child will never see, or hear, or walk, or talk” to reading independently, enjoying mathematics and writing letters.  Believe it or not, that is what Jacob has done!!

Jacob is only 4 years old, and while he cannot yet communicate entirely using his language, he can communicate using a letter board.  With this simple device, we can ask Jacob anything we want and he has endless options for answers, simply by pointing to the letters.

A few weeks ago, Jacob read a book, A Letter to Grandma.  He was very excited so we asked if he would like to write a letter to his grandma!  He pointed to the letters Y-E-S and got started!  Here is what Jacob wrote!


We are so impressed, everyday, by our amazing miracle.  We are forever grateful to the specialists at The Institutes for the Achievement of Human Potential for opening our eyes to the endless abilities of our incredible boy!

Jacob is doing incredibly well intellectually.  Next on our list, mobility!  Jacob works very hard everyday to get crawling and he continues to improve.  We look forward to the day we celebrate his crawling victory!